Welcome!

Hello! Welcome to my blog. This is a place where you can learn more about my medical journey and follow along with my health ups and downs.

I want to start by briefly introducing myself (for those of you that don’t know me). My name is Kelsey and I am 26 years old. I live in Oregon with my family. Over the past 6 years I went from being a medically ‘normal’ adult, living a life that I loved (working with animals) and starting to figure out who I was as an independent person, to being a disabled adult who struggles daily with many health issues and has little independence. I am now almost completely dependent on a feeding tube and have syncopal episodes multiple times a day. I also struggle with migraines, extreme fatigue, autonomic neuropathy, depression, anxiety, and the long term effects of malnutrition.

I have been talking about starting a blog for a while and in the spirit of Dysautonomia Awareness Month (October) felt that there was no better time. I would like to use this space to share what the last six years have been like for me and to continue to share what it is like to live in a body that constantly fails you. I plan to keep people updated on the day to day and to also be really open and honest about how difficult each day can be, both physically and emotionally. I am hoping that blogging will be a way for me to share my journey with others and to find my voice in this time of struggling.